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Doctors' Answers to "Frequently Asked Questions" - Wolf-Hirschhorn Syndrome

These comments are made for the purpose of discussion and should NOT be used as recommendations for or against therapies or other treatments. An individual patient is always advised to consult their own physician.

Wolf-Hirschhorn Syndrome [posted 07/1/1999]
Question: test

Answer: test

Wolf-Hirschhorn Syndrome [posted 8/4/98]
Question: What is life expectancy? Are there nutritional guidelines and feeding strategies? Can people with this syndrome be expected to walk? Are most people with this syndrome cognitively delayed?

Answer: Wolf-Hirschhorn Syndrome occurs with deletion of the 4p16 chromosome. It tends to be sporadic and not an inherited problem. The patients have mental retardation and an unusual face peculiar to the syndrome. I was unable to find information on their life expectancy. I have never seen or had a patient with the problem to give you perspective.

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